ROS1 People Unite — Power to the Patients!

In my last blog post I mentioned how difficult I find it to live with the uncertainty, knowing that there’s no obvious post-Xalkori treatment available for me, yet. Predictably, I received several messages from others in the lung cancer community try to reassure me that there are options. “Don’t worry, Zykadia is working great for me!” one person said. “Alectinib is awesome,” said another. But here’s the detail many missed: my cancer has the ROS1 driver mutation, not ALK.

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