ATTENTION ALL ROS1+ CANCER PATIENTS! Canadian ROS1 patients need our help ASAP!

Lung Cancer Canada is collecting data to support approval of crizotinib for ROS1+ non-small cell lung cancer in their country. Their deadline for submission is rapidly approaching, and they need more data to strengthen their case.

They would like ROS1+ patients who have taking crizotinib to share the following information (no names):

  • Demographic data (e.g., age, gender, date of diagnosis)
  • If currently or previously on crizotinib and for how long
  • Responses to crizotinib (e.g., reduction in size of tumor, no response, cancer progression)
  • Duration of the response
  • Side effects (what type, have they resolved, if yes, how)

Please email your responses immediately to Iwo Effiong at

Thank you for helping more ROS1 patients obtain access to crizotinib!

Published by

Gray Connections

I was diagnosed with non-small cell lung cancer in May 2011. The cancer became metastatic in October 2011. No, I never smoked anything (except a salmon). I've had no evidence of disease since January 2013 thanks to precision medicine, clinical trials, and other patients. ANYONE can get lung cancer. Using my engineering degrees (MIT SBME 1978, Caltech Aeronautics MS 1984 and ENGR 1986), I enjoyed a 20-year career in aerospace systems engineering as a technical translator of sorts: I researched a scientific or engineering subject and helped others understand how this new gizmo could benefit them. In the time I have left, I want to use my skills to help others who have lung cancer, and increase the visibility and knowledge of lung cancer among those who don't. I also study brain research, enjoy traveling, write science fiction, and geek out about all sorts of science stuff.

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