This website is run by a group of patients and family members dealing with ROS1 positive (ROS1+) cancer, also called ROS1-rearranged or ROS1 fusion cancer. The group currently has over 150 patients from over 19 countries–not bad for a rare cancer! We call ourselves “ROS1ders.”
We created this place to collect and share information living with, treating, and researching ROS1+ cancer. We also share blogs written by ROS1+ patients and carers in several countries. You can read some ROS1+ patient stories here.
Learn about joining one of our ongoing research studies into ROS1+ cancer and find links to published results.
If you are interested in partnering with the ROS1ders, or have a question not answered on our website, please send us a message using our Contact Us page so we can connect.
You can also contact us using the methods below:
The public Facebook group
A space to share and discuss ROS1 news and research
The private Facebook group
For patients and caregivers only. To join:
1) Fill out this form: https://goo.gl/forms/xDEtUnkSZkpafWjx2
2) Go to https://facebook.com/groups/ROS1cancer/ and request to join the group.
If you have any questions about the Facebook group, send a private FB message to administrators Tori Tomalia, Janet Freeman-Daily, or Lisa Goldman.
Bonnie J. Addario Lung Cancer Foundation
Supports ROS1 patients and carers, and enables ROS1 research through partnerships and funding.
Smart Patients has a ROS1 Cancer community. Relevant discussions are tagged “ROS1” to make them easy to find. Janet Freeman-Daily moderates it.
Follow the ROS1ders on Twitter at @ros1cancer.
You can download and print fliers to share information about this website, the ROS1 patient group, and our patient-driven research below:
We are in the process of translating the flier into other languages.
Last updated 24-May-2017