CT Scans #10-Update, and more…


Since the beginning, and for about two years, I had my blood drawn every month to check the level of my tumor markers.  Tumor markers  give me an indirect indication about the activity of my tumors…low levels indicate low or no growth, while elevated and/or rising values raise the concern that my tumors are growing. Additionally, … Continue reading CT Scans #10-Update, and more…

ROS1 People Unite — Power to the Patients!


In my last blog post I mentioned how difficult I find it to live with the uncertainty, knowing that there’s no obvious post-Xalkori treatment available for me, yet. Predictably, I received several messages from others in the lung cancer community try to reassure me that there are options. “Don’t worry, Zykadia is working great for … Continue reading ROS1 People Unite — Power to the Patients!

Het stuur in eigen handen


Grüne Haare


Small But Mighty: ROS1ers Unite


The times are a-changin’ in CancerLand. Gone are the days when you simply had breast cancer, lung cancer or leukemia. Now each has its own specific type and these days you can often discover what precise mutation is driving the cancer. As I discussed in my post “A Personal Take on Personalized Medicine,” my cancer … Continue reading Small But Mighty: ROS1ers Unite

Why I advocate