ROS1ders Meet the Rodents


What happens when you tell someone they have a terminal diagnosis and potentially less than a year to live? They cry, get scared, worry about the loved ones they will leave behind, and grieve. And if they are anything like the ROS1ders, they organize and make stuff happen. It has not been easy, and along … Continue reading ROS1ders Meet the Rodents

Announcing a Research Collaboration and Launch of a Patient Driven Clinical Study in ROS1 Positive Cancer


FOR IMMEDIATE RELEASE August 15, 2017 CONTACT: Samantha Cummis Addario Lung Cancer Medical Institute 650-598-2857 Samantha@LungCancerFoundation.org Susan Foreman Champions Oncology, Inc. 410-369-0365 SForeman@ChampionsOncology.com The Addario Lung Cancer Medical Institute, Champions Oncology and Motivated Patients Announce a Research Collaboration and Launch of a Patient Driven Clinical Study in ROS1 Positive Cancer SAN CARLOS, Calif. And Hackensack, … Continue reading Announcing a Research Collaboration and Launch of a Patient Driven Clinical Study in ROS1 Positive Cancer

The Global ROS1 Initiative


The Global ROS1 Initiative is a partnership between several stakeholders interested in ROS1 positive (ROS1+) cancer (also called ROS1 rearranged or ROS1 fusion cancer): The ROS1ders, an international group of patients and carers dealing with ROS1+ cancer spread over 19 countries Patient-focused nonprofits Bonnie J. Addario Lung Cancer Foundation (ALCF) and Addario Lung Cancer Medical … Continue reading The Global ROS1 Initiative

Diagnose ROS1 – und was jetzt?


Wir ROS1-Patientinnen und -Patienten sind selten. So selten, dass wir uns fast nie auf Krankenhausfluren begegnen. Wir treffen einander nicht in der örtlichen Selbsthilfegruppe oder auf Patiententagen. Aber wir wollen uns kennenlernen, denn wir haben ein gemeinsames Schicksal – Lungenkrebs mit einer ROS1-Translokation. Und wir haben brennende Fragen: Wie geht es den anderen Betroffenen, und … Continue reading Diagnose ROS1 – und was jetzt?

NCI Features the ROS1ders on its CCG Blog


Today the National Cancer Institute published this blog about the ROS1ders on the Center for Cancer Genomics “Insights and Innovations” blog.  The Global ROS1 Initiative is underway! ———————————————- ROS1+ Cancer Patients Partner to Increase Research May 23, 2017, by Janet Freeman-Daily, MS, Eng In May 2015, I met four friends in a bar near Washington, … Continue reading NCI Features the ROS1ders on its CCG Blog

Collecting ROS1-Positive Cancer Tissue for Research


The ROS1ders have partnered with the Bonnie J. Addario Lung Cancer Foundation (ALCF) with the goal of accelerating research into cancers that are driven by ROS1 fusions, or ROS1-positive (ROS1+) cancer.  Here’s more about how this project started.    This blog post summarizes one project of this initiative: the ROS1 biorepository. The biorepository will collect … Continue reading Collecting ROS1-Positive Cancer Tissue for Research