Please join us for informal ROS1der MEETUPS!


Many ROS1ders have expressed an interest in attending a virtual meet-up via Zoom for ROS1 patients and caregivers. Now it’s going to happen! The two co-hosts Renee Parker, MD, and Janet Lathan (ROS1 patients and members of the ROS1ders) will facilitate informal ROS1der MeetUps via Zoom twice monthly starting Tuesday, 11/10/2020 on the following dates: … Continue reading Please join us for informal ROS1der MEETUPS!

ROS1derings Newsletter Issue 4 is out!


The newest issue of ROS1derings, the newsletter of The ROS1ders, is out.  You can access the pdf file using the link below. Enjoy! ROS1derings Issue 4 (August 2020)

Pulmonary hypertension in ROS1+ patients on TKIs


Two independent studies found ROS1+ lung cancer patients are more likely to develop blood clots than patients who have other lung cancers. Pulmonary embolisms are not uncommon in the ROS1ders, and these types of blood clots can eventually result in pulmonary hypertension (because it increases pressure on the heart). The appearance of a new blood … Continue reading Pulmonary hypertension in ROS1+ patients on TKIs

ROS1derings Winter 2020 (The ROS1ders newsletter)


Welcome to the Winter 2020 issue of ROS1derings, the newsletter of The ROS1ders! This issue contains info about on our patient-driven research, a fundraising update, a summary of current targeted therapies for ROS1+ cancers, and tips on parenting after a ROS1+ cancer diagnosis. Thanks to editors Joyce Hoelting and Jeff Wynne, and contributors Lisa Goldman, … Continue reading ROS1derings Winter 2020 (The ROS1ders newsletter)

Ros1derings : August Edition


The second issue of our newsletter was released just over two weeks ago. For those who have missed it, you can grab it here : Ros1derings : August edition Contents include: A feature about Luna Okada, a 6.5 year ROS1der Some numbers about Xalkori use Fundraising updates Tips for traveling with stage 4 cancer An … Continue reading Ros1derings : August Edition

Entrectinib -Roche’s Gene-Targeting Drug Shows Promise in Child Brain Tumors


“The young boy was running out of time. His brain tumor was growing so fast that he had trouble putting words together. All standard cancer treatments had failed. Then last summer the child started taking an experimental pill that targeted a rare genetic mutation found inside his tumor. Within months, the malignant growth started to … Continue reading Entrectinib -Roche’s Gene-Targeting Drug Shows Promise in Child Brain Tumors