Single-Page Summary of The ROS1ders (You Know You Want It)


The ROS1ders have created a one page flier that describes our mission, programs, projects, and contact info.  A jpg verion is at the top of this blog, while the pdf version (in English) is available by clicking this link: The ROS1ders flier for IASLC WCLC21 (final) .

AEACaP and Lung Cancer Europe (LuCE) host “ROS-1 Lung Cancer Patients” webinar on 26-Mar-2021


The Spanish Association of Lung Cancer Patients (AEACaP) and Lung Cancer Europe (LuCE) will be hosting the webinar “ROS-1 Lung Cancer Patients” on Friday, March 26th, 2021 at 18.00 Central European Time (10 am Pacific Time). The event will provide information about the ROS1 biomarker and treatment in lung cancer, as well as research and … Continue reading AEACaP and Lung Cancer Europe (LuCE) host “ROS-1 Lung Cancer Patients” webinar on 26-Mar-2021

The ROS1ders publishes report to move ROS1+ cancer research forward


Today The ROS1ders published a white paper titled, “Sustaining and Accelerating Research for ROS1 Cancer.” The document summarizes key themes and subsequent discussions from two ROS1ders Research Roundtable virtual meetings, which brought together members of The ROS1ders with leading ROS1 clinicians and researchers. The report also offers a “Call to Action” to help move ROS1 … Continue reading The ROS1ders publishes report to move ROS1+ cancer research forward

Please join us for informal ROS1der MEETUPS!


Many ROS1ders have expressed an interest in attending a virtual meet-up via Zoom for ROS1 patients and caregivers. Now it’s going to happen! The two co-hosts Renee Parker, MD, and Janet Lathan (ROS1 patients and members of the ROS1ders) will facilitate informal ROS1der MeetUps via Zoom twice monthly starting Tuesday, 11/10/2020 on the following dates: … Continue reading Please join us for informal ROS1der MEETUPS!

ROS1derings Newsletter Issue 4 is out!


The newest issue of ROS1derings, the newsletter of The ROS1ders, is out.  You can access the pdf file using the link below. Enjoy! ROS1derings Issue 4 (August 2020)

Pulmonary hypertension in ROS1+ patients on TKIs


Two independent studies found ROS1+ lung cancer patients are more likely to develop blood clots than patients who have other lung cancers. Pulmonary embolisms are not uncommon in the ROS1ders, and these types of blood clots can eventually result in pulmonary hypertension (because it increases pressure on the heart). The appearance of a new blood … Continue reading Pulmonary hypertension in ROS1+ patients on TKIs