Advocating for ROS1


One of the founders of the ROS1ders, Janet Freeman-Daily, shares her story and why she advocates for molecular testing, clinical trials, and the positive changes she’s seen. “Given that lung cancer patients often don’t have much tumor tissue, we should make the best use of it, and running an NGS test is the best chance … Continue reading Advocating for ROS1

NCI Features the ROS1ders on its CCG Blog


Today the National Cancer Institute published this blog about the ROS1ders on the Center for Cancer Genomics “Insights and Innovations” blog.  The Global ROS1 Initiative is underway! ———————————————- ROS1+ Cancer Patients Partner to Increase Research May 23, 2017, by Janet Freeman-Daily, MS, Eng In May 2015, I met four friends in a bar near Washington, … Continue reading NCI Features the ROS1ders on its CCG Blog

Involving ROS1-Positive Cancer Patients in ROS1 Research


Hey ROS1ers: This is an IMPORTANT REQUEST! We all want to find a CURE for our disease, right? To do this, we need to know how many patients are willing and able to participate in ROS1 research. The results will hopefully motivate more patients to join us, generate more interest in collaborative ROS1 research, and … Continue reading Involving ROS1-Positive Cancer Patients in ROS1 Research

Profiles in Lung Cancer – Day 21: Dr. Ross Camidge “Progress will come from changing the way we think about cancer”


PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 D. Ross Camidge, MD, PhD  “Progress will come from changing the way we think about cancer” Director of the Thoracic Oncology Clinical and Clinical Research Programs, University of Colorado I am incredibly fortunate to have Dr. Ross Camidge as my lung cancer oncologist, clinical trial researcher, advocacy … Continue reading Profiles in Lung Cancer – Day 21: Dr. Ross Camidge “Progress will come from changing the way we think about cancer”

NCI & #LCSM Chat present a Google Hangout on Air 11/19 at 2pm ET: “Changing Landscape of Lung Cancer Research & Treatment”


Last year in November, The National Cancer Institute (NCI) and #LCSM Chat worked together to conduct a Twitter chat on precision medicine in lung cancer treatment.  This year, we’ve taken our collaboration a step further to create a highly engaging, interactive online event. …continue reading…

Profiles in Lung Cancer – Day 14: Anne-Marie Baird, PhD “Lung cancer can affect anyone, anywhere”


PROFILES IN LUNG CANCER – DAY 14 Lung Cancer Awareness Month 2015 Dr Anne-Marie Baird, Lung Cancer Researcher and Advocate “Lung cancer can affect anyone, anywhere.” Twitter handle: @BairdAM What is your connection with lung cancer? Both my grandmother and aunt died from the disease. My aunt died while I was researching lung cancer at … Continue reading Profiles in Lung Cancer – Day 14: Anne-Marie Baird, PhD “Lung cancer can affect anyone, anywhere”