ROS1 People Unite — Power to the Patients!


In my last blog post I mentioned how difficult I find it to live with the uncertainty, knowing that there’s no obvious post-Xalkori treatment available for me, yet. Predictably, I received several messages from others in the lung cancer community try to reassure me that there are options. “Don’t worry, Zykadia is working great for … Continue reading ROS1 People Unite — Power to the Patients!

Update #9 – It Never Ends


So. this is a weird place to be. I just had a PET scan and it was good. I mean, not perfect. Radiologists aren’t fond of unqualified perfect reports. They’re halfway to lawyer-ville with their CYA language …continue reading…