1,461 days and counting…


Wonder Drug!!


ROS1 People Unite — Power to the Patients!


In my last blog post I mentioned how difficult I find it to live with the uncertainty, knowing that there’s no obvious post-Xalkori treatment available for me, yet. Predictably, I received several messages from others in the lung cancer community try to reassure me that there are options. “Don’t worry, Zykadia is working great for … Continue reading ROS1 People Unite — Power to the Patients!

Small But Mighty: ROS1ers Unite


The times are a-changin’ in CancerLand. Gone are the days when you simply had breast cancer, lung cancer or leukemia. Now each has its own specific type and these days you can often discover what precise mutation is driving the cancer. As I discussed in my post “A Personal Take on Personalized Medicine,” my cancer … Continue reading Small But Mighty: ROS1ers Unite

Come Hear me at the GRACE Acquired Resistance Forum for ALK, ROS1 and EGFR Lung Cancer 10/03/2015


I hope you’ll join me and a host of lung cancer experts on Saturday, October 3, 2015 at the GRACE ALK, ROS1 & EGFR Acquired Resistance in Lung Cancer Patient Forum. I’m on the faculty, speaking about lung cancer patient survivorship. …continue reading…